Long-term health outcomes of people living with spina bifida
- Award ceiling
- $100,000 – $300,000
- Closes
- Oct 26, 2026
- Last verified
- 2026-10-22
Awards $100,000 – $300,000 per recipient for city or township governments, county governments, for profit organizations other than small businesses, independent school districts, native american tribal governments (federally recognized), nonprofits having a 501(c)(3) status with the irs, other than institutions of higher education, nonprofits that do not have a 501(c)(3) status with the irs, other than institutions of higher education, private institutions of higher education, public and state controlled institutions of higher education, small businesses, special district governments, state governments, closing Oct 26, 2026.
City or township governmentsCounty governmentsFor profit organizations other than small businessesIndependent school districtsNative American tribal governments (Federally recognized)Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher educationNonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher educationPrivate institutions of higher educationPublic and State controlled institutions of higher educationSmall businessesSpecial district governmentsState governmentsHealth & Human Services
In one sentence
Long-term health outcomes of people living with spina bifida awards $100,000 – $300,000 per recipient, open to city or township governments, county governments, for profit organizations other than small businesses, independent school districts, native american tribal governments (federally…
Record fields
- Program pool (total)
- $3,000,000Total across all awards in this programme. Not an amount any single applicant can receive.
- Award ceiling (per project)
- $300,000
- Award floor
- $100,000
- Typical award
- Not confirmed
- Deadline
- Oct 26, 2026
- Deadline type
- Fixed date
- Opens
- Aug 26, 2026
- Status
- Closing soon
- Eligible entities
- City or township governments · County governments · For profit organizations other than small businesses · Independent school districts · Native American tribal governments (Federally recognized) · Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education · Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education · Private institutions of higher education · Public and State controlled institutions of higher education · Small businesses · Special district governments · State governments
- Geography
- Not stated
- Matching funds
- No
- Disbursement
- Not confirmed
- Application effort
- Not confirmed
- Use of funds
- collect high-quality longitudinal data on children and adults with spina bifida · implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol · continue to collect data on patients with SB · analyze the data and share findings · finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele
- Currency
- USD
How much money is available?
Two different figures govern a programme and they are not interchangeable. The programme pool is what the funder has allocated across every award it will make this cycle. The award ceiling is the most one applicant can be granted.
Program pool (total)Across all awards this cycle
$3,000,000Award ceiling (per project)The most one applicant can receive
$300,000Who can apply?
level
Derived from the source that published this record
entity
City or township governments, County governments, For profit organizations other than small businesses, Independent school districts, Native American tribal governments (Federally recognized), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, Public and State controlled institutions of higher education, Small businesses
Source field: entity types+2more
, Special district governments, State governmentsindustry
Source field: industries
use
analyze the data and share findings, collect high-quality longitudinal data on children and adults with spina bifida, continue to collect data on patients with SB, finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele, implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol
Source field: use of fundssize limit
Not confirmed
Source field: applicant size limitclause text
Not confirmed
We store the structured fields above. Clause-by-clause text from the guidelines is not connected for this record.When does it close?
Oct 26, 20264 daysDeadline type Fixed date
What can the money be used for?
5 categorysThe source’s own spending categories, and what is not parsed.
collect high-quality longitudinal data on children and adults with spina bifidaimplement and evaluate the Urologic Management to Preserve Initial Renal Function Protocolcontinue to collect data on patients with SBanalyze the data and share findingsfinalize the UMPIRE protocol for children 0-10 years old with myelomeningocele
These categories come from the source's own classification. A line-item cost table, where the programme publishes one, lives in the guidelines and is not parsed for this record.
How hard is the application?
1 fieldEffort, match requirement and reimbursement, as the source stated them.
- Application effort
- Not confirmed
- Disbursement
- Not confirmed
- Matching funds
- No
Who has received this funding?
112 awardsAwards on file for this programme, counted rather than modelled.
112 prior awards on file for this programme, largest first. Every row comes from the funder's own award listing; nothing here is estimated.
| Recipient | State | Amount | Fiscal year |
|---|---|---|---|
| SPECIAL OLYMPICS INC. | Not stated | $102,371,938 | 2021 |
| UNIVERSITY OF ALABAMA AT BIRMINGHAM | Not stated | $38,904,574 | 2021 |
| UNIVERSITY OF SOUTH CAROLINA | Not stated | $7,345,638 | 2017 |
| THE JOHNS HOPKINS UNIVERSITY | Not stated | $6,940,898 | 2023 |
| THE JOHNS HOPKINS UNIVERSITY | Not stated | $6,659,319 | 2021 |
| THE REGENTS OF THE UNIVERSITY OF COLORADO | Not stated | $5,114,687 | 2011 |
| TOURETTE ASSOCIATION OF AMERICA INC. | Not stated | $4,692,268 | 2019 |
| RUSH UNIVERSITY MEDICAL CENTER | Not stated | $4,500,000 | 2021 |
| THE UNIVERSITY OF IOWA | Not stated | $4,295,000 | 2018 |
| CHADD, INC. (CHILDREN & ADULTS WITH ATTENTION-DEFICIT/HYPERACTIVITY DISORDER) | Not stated | $4,250,000 | 2019 |
| HEALTH RESEARCH, INC. | Not stated | $4,244,335 | 2018 |
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | Not stated | $4,242,384 | 2018 |
| PUBLIC HEALTH, MASSACHUSETTS DEPARTMENT OF | Not stated | $4,230,438 | 2013 |
| ARKANSAS CHILDREN'S RESEARCH INSTITUTE | Not stated | $4,095,939 | 2013 |
| THE LELAND STANFORD JUNIOR UNIVERSITY | Not stated | $4,044,146 | 2018 |
| MICHIGAN DEPARTMENT OF HEALTH AND HUMAN SERVICES | Not stated | $4,036,140 | 2021 |
| UNIVERSITY OF WISCONSIN SYSTEM | Not stated | $3,917,841 | 2016 |
| SOCIETY FOR MATERNAL-FETAL MEDICINE | Not stated | $3,879,627 | 2023 |
| ASSOCIATION OF MATERNAL AND CHILD HEALTH PROGRAMS | Not stated | $3,711,781 | 2023 |
| ORGANIZATION OF TERATOLOGY INFORMATION SPECIALISTS, NFP | Not stated | $3,632,986 | 2023 |
| THE REGENTS OF THE UNIVERSITY OF COLORADO | Not stated | $3,584,210 | 2021 |
| HEALTH RESEARCH, INC. | Not stated | $3,539,631 | 2013 |
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | Not stated | $3,483,953 | 2013 |
| THE UNIVERSITY OF IOWA | Not stated | $3,470,000 | 2013 |
| THE LELAND STANFORD JUNIOR UNIVERSITY | Not stated | $3,444,898 | 2013 |
| AMERICAN COLLEGE OF OBSTETRICIANS AND GYNECOLOGISTS | Not stated | $3,275,000 | 2023 |
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | Not stated | $3,254,180 | 2021 |
| HEALTH RESEARCH, INC. | Not stated | $3,251,250 | 2023 |
| PUBLIC HEALTH, MASSACHUSETTS DEPARTMENT OF | Not stated | $3,251,250 | 2023 |
| UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES | Not stated | $3,251,250 | 2023 |
| DEPARTMENT OF PUBLIC HEALTH ILLINOIS | Not stated | $3,136,000 | 2023 |
| HEALTH AND HUMAN RESOURCES, WEST VIRGINIA DEPARTMENT OF | Not stated | $2,868,137 | 2023 |
| NATIONAL BIRTH DEFECTS PREVENTION NETWORK INC. | Not stated | $2,550,000 | 2023 |
| PUBLIC HEALTH, MASSACHUSETTS DEPARTMENT OF | Not stated | $2,411,762 | 2023 |
| EMORY UNIVERSITY | Not stated | $2,402,977 | 2019 |
| UNIVERSITY OF UTAH | Not stated | $2,325,000 | 2019 |
| UNIVERSITY OF ARIZONA | Not stated | $2,320,000 | 2019 |
| HEALTH RESEARCH, INC. | Not stated | $2,290,213 | 2019 |
| MINNESOTA DEPARTMENT OF HEALTH | Not stated | $2,250,000 | 2021 |
| UTAH DEPARTMENT OF HEALTH AND HUMAN SERVICES | Not stated | $2,177,164 | 2021 |
| THE LELAND STANFORD JUNIOR UNIVERSITY | Not stated | $2,167,500 | 2023 |
| THE UNIVERSITY OF IOWA | Not stated | $2,167,500 | 2023 |
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | Not stated | $2,167,500 | 2023 |
| UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON | Not stated | $2,167,500 | 2023 |
| TRUSTEES OF INDIANA UNIVERSITY | Not stated | $2,134,783 | 2023 |
| TENNESSEE DEPARTMENT OF HEALTH | Not stated | $2,117,500 | 2023 |
| TENNESSEE DEPARTMENT OF HEALTH | Not stated | $2,098,428 | 2021 |
| FASD UNITED INC | Not stated | $2,098,004 | 2022 |
| MARSHFIELD CLINIC, INC. | Not stated | $2,078,808 | 2023 |
| UNIVERSITY OF WISCONSIN SYSTEM | Not stated | $2,076,798 | 2021 |
| UNIVERSITY OF SOUTH FLORIDA | Not stated | $2,020,173 | 2023 |
| NORTH CAROLINA DEPARTMENT OF HEALTH & HUMAN SERVICES | Not stated | $1,985,852 | 2021 |
| STATE OF GEORGIA DEPARTMENT OF PUBLIC HEALTH | Not stated | $1,940,336 | 2023 |
| UNIVERSITY OF UTAH | Not stated | $1,940,000 | 2023 |
| SOUTH CAROLINA DEPARTMENT OF PUBLIC HEALTH | Not stated | $1,915,000 | 2019 |
| AURORA HEALTH CARE, INC. | Not stated | $1,911,956 | 2023 |
| DUKE UNIVERSITY | Not stated | $1,911,151 | 2019 |
| BOSTON MEDICAL CENTER CORPORATION | Not stated | $1,902,691 | 2023 |
| WASHINGTON UNIVERSITY, THE | Not stated | $1,861,124 | 2021 |
| DEPARTMENT OF STATE HEALTH SERVICES | Not stated | $1,800,000 | 2021 |
| FLORIDA DEPARTMENT OF HEALTH | Not stated | $1,800,000 | 2021 |
| HEALTH, NEW JERSEY DEPARTMENT OF | Not stated | $1,800,000 | 2021 |
| SOUTH CAROLINA DEPARTMENT OF PUBLIC HEALTH | Not stated | $1,800,000 | 2021 |
| ALLIANCECHICAGO | Not stated | $1,756,001 | 2023 |
| ARIZONA DEPARTMENT OF HEALTH SERVICES | Not stated | $1,740,000 | 2021 |
| MEDSTAR HEALTH RESEARCH INSTITUTE INC. | Not stated | $1,703,636 | 2023 |
| OAK RIDGE ASSOCIATED UNIVERSITIES, INCORPORATED | Not stated | $1,677,115 | 2023 |
| BOARD OF REGENTS OF NEVADA SYSTEM OF HIGHER EDUCATION | Not stated | $1,672,500 | 2022 |
| MONTANA STATE UNIVERSITY | Not stated | $1,672,500 | 2022 |
| UNIVERSITY OF ALASKA ANCHORAGE | Not stated | $1,672,500 | 2022 |
| UNIVERSITY OF TEXAS AT AUSTIN | Not stated | $1,672,292 | 2022 |
| AMERICAN ACADEMY OF FAMILY PHYSICIANS | Not stated | $1,662,589 | 2022 |
| UNIVERSITY OF ROCHESTER | Not stated | $1,653,122 | 2023 |
| OHIO STATE UNIVERSITY, THE | Not stated | $1,602,231 | 2023 |
| FASD UNITED INC | Not stated | $1,600,000 | 2018 |
| MINNESOTA DEPARTMENT OF HEALTH | Not stated | $1,600,000 | 2022 |
| UNIVERSITY OF ALASKA ANCHORAGE | Not stated | $1,599,155 | 2018 |
| THE UNIVERSITY OF IOWA | Not stated | $1,599,141 | 2020 |
| BOSTON MEDICAL CENTER CORPORATION | Not stated | $1,586,104 | 2018 |
| UNIVERSITY OF CONNECTICUT HEALTH CENTER | Not stated | $1,585,802 | 2018 |
| HENRY FORD HEALTH SYSTEM | Not stated | $1,550,558 | 2018 |
| FLORIDA DEPARTMENT OF HEALTH | Not stated | $1,540,000 | 2023 |
| SOUTHERN NEVADA HEALTH DIST | Not stated | $1,516,564 | 2023 |
| TRUSTEES OF BOSTON UNIVERSITY | Not stated | $1,494,456 | 2022 |
| AMERICAN ACADEMY OF PEDIATRICS | Not stated | $1,492,500 | 2023 |
| OAK RIDGE ASSOCIATED UNIVERSITIES, INCORPORATED | Not stated | $1,484,265 | 2022 |
| HEALTH, NEW JERSEY DEPARTMENT OF | Not stated | $1,483,525 | 2023 |
| PREECLAMPSIA FOUNDATION | Not stated | $1,330,000 | 2023 |
| MINNESOTA DEPARTMENT OF HEALTH | Not stated | $1,319,358 | 2022 |
| DEPARTMENT OF STATE HEALTH SERVICES | Not stated | $1,300,000 | 2023 |
| BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA | Not stated | $1,263,693 | 2023 |
| EMORY UNIVERSITY | Not stated | $1,163,850 | 2022 |
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | Not stated | $1,148,776 | 2023 |
| HEALTH SERVICES KENTUCKY CABINET FOR | Not stated | $1,048,597 | 2016 |
| DEPARTMENT OF PUBLIC HEALTH ILLINOIS | Not stated | $1,043,497 | 2016 |
| UNIVERSITY OF ALASKA ANCHORAGE | Not stated | $1,000,000 | 2018 |
| BOARD OF REGENTS OF NEVADA SYSTEM OF HIGHER EDUCATION | Not stated | $999,441 | 2018 |
| DEPARTMENT OF STATE HEALTH SERVICES | Not stated | $988,046 | 2016 |
| ACOG FOUNDATION | Not stated | $958,270 | 2018 |
| AMERICAN ACADEMY OF FAMILY PHYSICIANS | Not stated | $946,784 | 2018 |
Recipient names as published by the California Grants Portal.
What comparable notices state
291 recordsStated ceilings on open records in the same industry.
Among open records stored under Health & Human Services, 291 of 889 state an award ceiling. Those that do run:
- 25th percentile$357,500
- Median$600,000
- 75th percentile$1,500,000
A statistical estimate, not a prediction. It describes what a set of notices has published in this catalogue on the day you read it, and says nothing about what this programme will award. Records stating no ceiling are excluded rather than counted as zero, and the programme pool — what a funder has across every applicant — is a different column and is never mixed in.
Who has won this programme before?
112 awardsAwards under the same assistance listing, not under this notice.
112 federal awards on file under assistance listing 93.073, the programme this notice is published under. These are not awards made under this notice — a listing covers every year the programme runs, and awards under an open notice do not exist yet.
- $102,371,938SPECIAL OLYMPICS INC.DC · FY2021
- $38,904,574UNIVERSITY OF ALABAMA AT BIRMINGHAMAL · FY2021
- $7,345,638UNIVERSITY OF SOUTH CAROLINASC · FY2017
- $6,940,898THE JOHNS HOPKINS UNIVERSITYMD · FY2023
- $6,659,319THE JOHNS HOPKINS UNIVERSITYMD · FY2021
Common questions
7 questionsEvery answer is a stored field from this record. Questions the source did not answer are not asked.
- How much can one applicant receive?
- $100,000 – $300,000 per recipient.
- How much funding is available in total?
- $3,000,000 across the whole programme. This is the total the funder has allocated, not an amount any single applicant can receive.
- When is the application deadline?
- Oct 26, 2026.
- Who is eligible to apply?
- City or township governments, County governments, For profit organizations other than small businesses, Independent school districts, Native American tribal governments (Federally recognized), Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education, Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education, Private institutions of higher education, Public and State controlled institutions of higher education, Small businesses, Special district governments, State governments.
- What can the funding be used for?
- collect high-quality longitudinal data on children and adults with spina bifida, implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol, continue to collect data on patients with SB, analyze the data and share findings, finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele, as classified by the source.
- Is matching funding required?
- No. The source states that no matching funds are required.
- Has this programme funded anyone before?
- 112 prior awards are on file for this programme, made by Centers for Disease Control - NCBDDD. Recipients, amounts and fiscal years are listed on this page.
AI summary of the source text
Optional. Every core field on this record is already above, free and complete.
AI summary of the source text
Studio reads this record’s stored eligibility and materials text and breaks it into separate points, each quoting the exact words it came from. It never writes application prose, never guesses at a field the source did not state, and never estimates anyone’s chances.
Included with Studio
Sign inWhat else is open
Also open from Centers for Disease Control - NCBDDD
- Surveillance and Case Control Study of Stillbirth and Birth Defects (SUCCSSBD)Closes Not statedAwards Not stated
- Maternal-Child Surveillance and Partnerships for Action, Results, and KnowledgeCloses Not statedAwards Not stated
Also open under assistance listing 93.073
A listing names the programme; a notice names one round of it. These are other rounds open now, not other years of this one.
- Surveillance and Case Control Study of Stillbirth and Birth Defects (SUCCSSBD)Closes Not statedAwards Not stated
- Maternal-Child Surveillance and Partnerships for Action, Results, and KnowledgeCloses Not statedAwards Not stated
- NIH, CDC and FDA Small Business Innovation Research Grant (Parent SBIR [R43/R44] Clinical Trial Optional)Closes Apr 5, 2027Awards Not stated
Provenance
Source pagegrants.gov
Retrieved2026-10-22
MethodAutomated check
First seen2026-09-02
Assistance listing93.073
The official page governs. If the source and this record disagree, the source is correct — programmes change their terms between our checks, so confirm every figure above before you apply.